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Showing posts from May, 2024

Perseverance in the face of disappointment

 Hello Fam <3 Quick update. Seung is getting surgery tomorrow, bright and early in the morning. He was originally scheduled for May 21st, but he tested positive for COVID 2 weeks ago and needed to postpone his surgery to May 28th.  Initially we were told that protocol called for a 3 week postponement... The anxiety and disappointment that followed were reminiscent of when Seung was first diagnosed. And let me tell you, it was giving me flashbacks. We had run so hard towards a singular goal: to get Seung treated and to receive this specialized treatment from UCSF. But to be told that we would need to postpone was so devastating. Seung had to be off of chemo for 6-8 weeks before surgery and as a result, his liver enzymes were already incredibly elevated... so having to wait another 3 weeks, and possibly even forgo surgery until we could get his liver functioning better was so so disappointing. I wanted to throw in the towel and sit in my sorrow.  Persevering in the face ...

Learning to be content

Hello, this is Seung.   I have received 19th chemo sessions so far.  My last one was on April 8th.  What happened since then? My weight is at 183 pounds.  I lose about 4 pounds in the week that I get chemo. My CEA (carcinoembryonic antigen) has been going up.  It went down to 73.7, but it is at 233. I am praying that it will go back down.  My 17th (and 19th) chemo session were postponed due to low white blood cell count. I got two haircuts.   My brother and his wife visited. My parents visited for O's first birthday. I still have neuropathy.  My family visited San Diego. O is walking and even running! (Not talking yet, just random noises) Since the new year, I have been trying to have my sons read the Bible more often.  C can read on his own, so he just finished Numbers.  A and O cannot read yet, so I read the Bible for them (when I feel good enough).  For A, we read shorter books (like 2 and 3 John).  Once we got thr...